A qualitative approach to experiential knowledge identified in focus groups aimed at co-designing a provocation test in the study of electrohypersensitivity

2022 · Unclear · Insufficient evidence

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UnclearInsufficient evidencePaper 698

The article reports on a participatory focus-group approach that incorporates electrohypersensitive persons' experiential knowledge to help develop an experimental protocol for provocation studies. It highlights the complexity and controversial nature of EHS …

Study snapshot

Publicationmanual · 2022

Study typeother

Reported directionUnclear

Evidence ratingInsufficient

Abstract

A qualitative approach to experiential knowledge identified in focus groups aimed at co-designing a provocation test in the study of electrohypersensitivity Bordarie J, Dieudonné M, Ledent M, Prignot N. A qualitative approach to experiential knowledge identified in focus groups aimed at co-designing a provocation test in the study of electrohypersensitivity. Ann Med. 2022 Dec;54(1):2363-2375. doi: 10.1080/07853890.2022.2114605. Abstract Patients' experiential knowledge is increasingly recognised as valuable for biomedical research. Its contribution can reveal unexplored aspects of their illnesses and allows research priorities to be refined according to theirs. It can also be argued that patients' experiential knowledge can contribute to biomedical research, by extending it to the most organic aspects of diseases. A few examples of collaboration between medicine and patient associations are promising, even if there is no single, simple methodology to apply. This article provides feedback on a project involving the experiential knowledge of electrohypersensitive persons with a view to developing an experimental protocol to study their condition. It presents the participatory approach with focus groups that was implemented and reflects on ways to take advantage of experiential knowledge. It also demonstrates the complexity of the electrohypersensitivity syndrome and reflects on the difficult transition between the experiential knowledge and the experimental design of provocation studies. KEY MESSAGES Experiential knowledge is a valuable source of information for research and the design of investigation protocols.The participatory approach allows co-designing protocols by drawing on experiential knowledge.The controversial dimension of EHS reveals the complexity of translating experiential knowledge into an experimental protocol. tandfonline.com

Machine Enhanced Logic

AI evidence extraction

Structured fields below were generated from the paper’s abstract and metadata to make the evidence easier to inspect. Automated extraction may be incomplete or incorrect; verify important details against the original paper.

Study typeother

Effect directionunclear

PopulationElectrohypersensitive persons (patients) participating in focus groups

Sample sizeNot supplied

ExposureNot supplied

Evidence strengthInsufficientConfidence: 74% · Peer reviewed: yes

Main findings

Outcomes measured

Experiential knowledge relevant to designing an experimental provocation test protocol for electrohypersensitivity (EHS)
Reflections on participatory co-design process and translation of experiential knowledge into experimental design

Limitations

No quantitative exposure parameters (frequency, SAR, duration) described in the abstract
Sample size not reported in the abstract
Qualitative/participatory feedback rather than an exposure-outcome test in the abstract

View raw extracted JSON

{
  "study_type": "other",
  "exposure": {
    "band": null,
    "source": null,
    "frequency_mhz": null,
    "sar_wkg": null,
    "duration": null
  },
  "population": "Electrohypersensitive persons (patients) participating in focus groups",
  "sample_size": null,
  "outcomes": [
    "Experiential knowledge relevant to designing an experimental provocation test protocol for electrohypersensitivity (EHS)",
    "Reflections on participatory co-design process and translation of experiential knowledge into experimental design"
  ],
  "main_findings": "The article reports on a participatory focus-group approach that incorporates electrohypersensitive persons' experiential knowledge to help develop an experimental protocol for provocation studies. It highlights the complexity and controversial nature of EHS and discusses challenges in translating experiential knowledge into experimental design.",
  "effect_direction": "unclear",
  "limitations": [
    "No quantitative exposure parameters (frequency, SAR, duration) described in the abstract",
    "Sample size not reported in the abstract",
    "Qualitative/participatory feedback rather than an exposure-outcome test in the abstract"
  ],
  "evidence_strength": "insufficient",
  "confidence": 0.74,
  "peer_reviewed_likely": "yes",
  "keywords": [
    "electrohypersensitivity",
    "EHS",
    "experiential knowledge",
    "focus groups",
    "participatory research",
    "co-design",
    "provocation test",
    "qualitative"
  ],
  "suggested_hubs": [
    {
      "slug": "electrohypersensitivity",
      "weight": 0.95,
      "reason": "Focus groups with electrohypersensitive persons to co-design a provocation study protocol."
    }
  ]
}

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AI-extracted fields are generated from the abstract and metadata and may be incomplete or incorrect. This material is for informational purposes and is not medical advice.

Identifiers and source

DOI: 10.1080/07853890.2022.2114605
PubMed: Not supplied

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