The commenter describes a meningioma diagnosed at age 22, lasting neurological effects and rehabilitation…

HHS public comment #6033 · HHS-OASH-2026-0397 · 2026-10-28

#1The commenter describes a meningioma diagnosed at age 22, lasting neurological effects and rehabilitation…by Jessica Harp » 2026-10-28
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The commenter describes a meningioma diagnosed at age 22, lasting neurological effects and rehabilitation, and later tumor growth during pregnancy. They wonder whether earlier phone use contributed and request more safety research.

AI-reviewed source analysis of the original text, not verified medical findings. Attachments are not reviewed.

Original comment · unedited text

At 22 years old, I was diagnosed with a skull based Meningioma behind my right ear. I was studying in the university library when my left ear bud fell out of my ear and I couldn’t hear music in my right ear. My life would soon change forever. I first found out I was deaf in my right ear and then after an MRI showed a meningioma. I received a cell phone for my 13th birthday and the location of the Meningioma seemed to line up. We always wondered if it caused my brain tumor. It was extremely rare for a 22 year old to get that type of tumor, and rare that it was hard and sticky. This caused me to lose function of the right side of my body. I had to learn to walk again, read again, word finding and speech was difficult. I still managed to graduate college, and after 6 months of therapy, I went to graduate school and became a mental health therapist. At 34 I was pregnant with my first child, which most likely caused it to grow again. I am about to have a second surgery, and pray it goes better than the first. I also pray I can safely carry another pregnancy. More research needs done to ensure safety.

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